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Charity Summary
Charity Details
New Zealand Pompe Network
CC54486
9429044424985
Registered
Registration details
18/04/2017
March 31
Address for service
181C Willow Park Drive
RD 11
Opaki
Masterton
5871
Charity's other details
0274069365

https://www.facebook.com/nzpompe/

https://twitter.com/PompeNowWhat
Purpose & Structure
Charitable Purpose
To offer support, information, friendship and hope to those affected by Pompe Disease
Note: The main sectors, activities and beneficiaries are bolded.
Provides advice / information / advocacy
Provides services (e.g. care / counselling)
People with disabilities
Education / training / research, Health, Fund-raising
People with disabilities
Entity Structure
We have a head office based in Masterton with elected committee members across New Zealand. There are five executive positions that constitute our governance board. We are affiliated with the International Pompe Association founded in the Netherlands.
Annual Returns
Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.
Officer Details
Officers
Past Officers
Charity Updates
Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.