Charities Services

Use this to find information about a particular charity.

Charity Summary

Charity Details

Legal name of the Charity:

New Zealand Pompe Network

Registration number:

CC54486

NZBN number:

9429044424985

Current Status:

Registered

Registration details

Date of Registration:

18/04/2017

Balance Date:

March 31

Address for service

Charity's Postal Address:

585C Norfolk Road

RD 1

Upper Plain

Carterton

5791

Charity's other details

Phone:

0274069365

Email:

president@nzpompe.network

Website:

http://nzpompe.network

Facebook:

https://www.facebook.com/nzpompe/

Twitter:

https://twitter.com/PompeNowWhat

Areas of Operation:

Nationwide

Organisation with a focus on the following communities:

N/A

View Charity Link:

https://www.register.charities.govt.nz/Charity/CC54486

Purpose & Structure

Charitable Purpose

To offer support, information, friendship and hope to those affected by Pompe Disease

Note: The main sectors, activities and beneficiaries are bolded.

Activities:

Provides advice / information / advocacy

Provides services (e.g. care / counselling)

Sectors:

People with disabilities

Education / training / research, Health, Fund-raising

Beneficiaries:

People with disabilities

Legal Structure

Charitable Trusts incorporated under the Charitable Trusts Act

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Note: Charities that use the Tier 4 Combined Form to file their annual returns do not need to file their financial statements separately. The financial statements are included in their annual return summary.

For Year Ended	Due Date	Date Submitted	Total Income	Total Expenditure	Financial Statements
31/03/2025	30/09/2025	7/09/2025	$31,381	$15,783	Included in Annual Return
31/03/2024	30/09/2024	12/06/2024	$42,840	$34,071	Included in Annual Return
31/03/2023	30/09/2023	15/08/2023	$9,783	$71,476	Included in Annual Return
31/03/2022	30/09/2022	8/06/2022	$67,753	$18,183	Included in Annual Return
31/03/2021	30/09/2021	17/09/2021	$34,267	$46,616	Included in Annual Return
31/03/2020	30/09/2020	8/09/2020	$18,958	$35,712	Included in Annual Return
31/03/2019	30/09/2019	3/09/2019	$75,493	$29,956	Included in Annual Return
31/03/2018	30/09/2018	5/09/2018	$49,897	$35,109	Included in Annual Return

Officer Details

Officers

Officer Name	Position	Effective Date
Ryan Colburn	Committee Member	6/06/2025
Allyson Lock	President	26/05/2024
Robert Turner	Secretary	12/05/2019
Christine Ann Turner	Vice President	10/02/2017
Stephen Lock	Treasurer	10/02/2017

Past Officers

Officer Name	Position	Past Since
Samantha Emily Lenik	Vice President	6/06/2025
Tony Harris	President	12/03/2025
Allyson Sarah Lock	President	26/05/2024
Allyson Lock	President	26/05/2024
Vaughan Thomas	Secretary, NZ Pompe Network	22/03/2019

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.

Date Created	Reference	View Summary (.pdf <1MB)
11/06/2025	NOC014
19/03/2025	NOC013
6/06/2024	NOC011
13/05/2019	NOC005
13/05/2019	NOC004
29/10/2017	NOC002
11/10/2017	NOC001

Charity Documents

Date Uploaded	Document Type	Reference Name