Charities Services

Use this to find information about a particular charity.

Charity Summary

Charity Details

Legal name of the Charity:

New Zealand Pompe Network

Registration number:

CC54486

NZBN number:

9429044424985

Current Status:

Registered

Registration details

Date of Registration:

18/04/2017

Balance Date:

March 31

Address for service

Charity's Postal Address:

181C Willow Park Drive

RD 11

Opaki

Masterton

5871

Charity's other details

Phone:

0274069365

Email:

nz.pompe@gmail.com

Website:

http://nzpompe.network

Facebook:

https://www.facebook.com/nzpompe/

Twitter:

https://twitter.com/PompeNowWhat

Areas of Operation:

Nationwide

View Charity Link:

https://www.register.charities.govt.nz/Charity/CC54486

Purpose & Structure

Charitable Purpose

To offer support, information, friendship and hope to those affected by Pompe Disease

Note: The main sectors, activities and beneficiaries are bolded.

Activities:

Provides advice / information / advocacy

Provides services (e.g. care / counselling)

Sectors:

People with disabilities

Education / training / research, Health, Fund-raising

Beneficiaries:

People with disabilities

Entity Structure

We have a head office based in Masterton with elected committee members across New Zealand. There are five executive positions that constitute our governance board. We are affiliated with the International Pompe Association founded in the Netherlands.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Due Date	Date Submitted	Total Income	Total Expenditure	Financial Statements	Annual Return Summary
30/09/2023	-	-	-	To be filed	To be filed
30/09/2022	8/06/2022	$67,753	$18,183
30/09/2021	17/09/2021	$34,267	$46,616
30/09/2020	8/09/2020	$18,958	$35,712
30/09/2019	3/09/2019	$75,493	$29,956
30/09/2018	5/09/2018	$49,897	$35,109

Officer Details

Officers

Officer Name	Position	Effective Date
Robert Turner	Committee Member	12/05/2019
Allyson Sarah Lock	President	10/02/2017
Christine Ann Turner	Secretary	10/02/2017
Samantha Emily Lenik	Vice President	10/02/2017
Stephen Lock	Treasurer	10/02/2017

Past Officers

Officer Name	Position	Past Since
Vaughan Thomas	Secretary, NZ Pompe Network	22/03/2019

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.

Date Created	Reference	View Summary (.pdf <1MB)
13/05/2019	NOC005
13/05/2019	NOC004
29/10/2017	NOC002
11/10/2017	NOC001