Charities Services

Use this to find information about a particular charity.

Charity Summary

Charity Details

Legal name of the Charity:

New Zealand Pompe Network

Registration number:

CC54486

NZBN number:

9429044424985

Current Status:

Registered

Registration details

Date of Registration:

18/04/2017

Balance Date:

March 31

Address for service

Charity's Postal Address:

79 Jackson Road

RD 9

Maungatapere

Whangarei

0179

Charity's other details

Phone:

O211048048

Email:

tony@nzpompe.network

Website:

http://nzpompe.network

Facebook:

https://www.facebook.com/nzpompe/

Twitter:

https://twitter.com/PompeNowWhat

Areas of Operation:

Nationwide

Organisation with a focus on the following communities:

N/A

View Charity Link:

https://www.register.charities.govt.nz/Charity/CC54486

Purpose & Structure

Charitable Purpose

To offer support, information, friendship and hope to those affected by Pompe Disease

Note: The main sectors, activities and beneficiaries are bolded.

Activities:

Provides advice / information / advocacy

Provides services (e.g. care / counselling)

Sectors:

People with disabilities

Education / training / research, Health, Fund-raising

Beneficiaries:

People with disabilities

Legal Structure

Charitable Trusts incorporated under the Charitable Trusts Act

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

For Year Ended	Due Date	Date Submitted	Total Income	Total Expenditure
31/03/2024	30/09/2024	12/06/2024	$42,840	$34,071
31/03/2023	30/09/2023	15/08/2023	$9,783	$71,476
31/03/2022	30/09/2022	8/06/2022	$67,753	$18,183
31/03/2021	30/09/2021	17/09/2021	$34,267	$46,616
31/03/2020	30/09/2020	8/09/2020	$18,958	$35,712
31/03/2019	30/09/2019	3/09/2019	$75,493	$29,956
31/03/2018	30/09/2018	5/09/2018	$49,897	$35,109

Officer Details

Officers

Officer Name	Position	Effective Date
Allyson Lock	Executive Officer	26/05/2024
Tony Harris	President	26/05/2024
Robert Turner	Committee Member	12/05/2019
Christine Ann Turner	Secretary	10/02/2017
Samantha Emily Lenik	Vice President	10/02/2017
Stephen Lock	Treasurer	10/02/2017

Past Officers

Officer Name	Position	Past Since
Allyson Sarah Lock	President	26/05/2024
Allyson Lock	President	26/05/2024
Vaughan Thomas	Secretary, NZ Pompe Network	22/03/2019

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.

Date Created	Reference	View Summary (.pdf <1MB)
6/06/2024	NOC011
13/05/2019	NOC005
13/05/2019	NOC004
29/10/2017	NOC002
11/10/2017	NOC001

Charity Documents

Date Uploaded	Document Type	Reference Name