Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.
Note: The main sectors, activities and beneficiaries are bolded.
Provides advice / information / advocacy
Acts as an umbrella / resource body, Provides services (e.g. care / counselling)
Education / training / research, People with disabilities
People with disabilities
Ehlers-Danlos Syndromes New Zealand’s Leadership consists of the President, Treasurer and Secretary. Our Committee size is 6 in October 2023. We are always looking for more committee members.
Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.
Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.