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Charity Summary

This is the charity information for: The New Zealand Lysosomal Storage Diseases Trust.

Charity Details

Deregistration details

The New Zealand Lysosomal Storage Diseases Trust
Lysosomal Diseases New Zealand
CC24962
9429042967507
Deregistered
31/03/2021
No longer operating bank accounts or receiving funds. Continuing as an informal network via social media only.

Financial information at the time of Deregistration:

$0
$0

Below are details of The New Zealand Lysosomal Storage Diseases Trust at the date of deregistration:

The New Zealand Lysosomal Storage Diseases Trust
Lysosomal Diseases New Zealand
CC24962
9429042967507
Deregistered

Registration details

26/05/2008
June 30

Registration history

Registration Action Date effective Reason
De-registered 31/03/2021 The charity is continuing to operate but does not want to be registered any longer
Registered 26/05/2008

Address for service

125 Cuba Street
Petone
Lower Hutt
5012

Charity's other details

0272403377
john.forman@xtra.co.nz
https://www.facebook.com/groups/172221112849202/


Organisation with a focus on the following communities:

N/A

https://www.register.charities.govt.nz/Charity/CC24962

Purpose & Structure

Charitable Purpose

To improve contacts information and support among people affected by Lysosomal Storage Diseases, and their families within New Zealand, To support and advocate for accelerated research into the causes and treatments of Lysosomal storage diseases, and or improvements to the clinical care of affected people. To build links with overseas families, support groups to support knowledge about theses diseases and advance the objectives of the trust. To promote education of families, clinicians and others involved in the care of affected people and their families. To support and advocate for the establishment of medical testing screening, other specialist services.

Note: The main sectors, activities and beneficiaries are bolded.

Provides advice / information / advocacy

Makes grants / loans to individuals

People with disabilities

Education / training / research, Health, Fund-raising

Family / whanau

Children / young people, People with disabilities

Entity Structure

LDNZ is governed by a Board of Trustees which includes the Chairperson and 2 other members. After 20 years of employing a part-time field officer / administrator, the Trust is now managed by the chair in a voluntary role.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Note: Charities that use the Tier 4 Combined Form to file their annual returns do not need to file their financial statements separately. The financial statements are included in their annual return summary.

Exemptions

This charity has been granted an exemption from filing an annual return by 31 December 2008 under section 43 of the Charities Act 2005. The first annual return is due by 31 December 2009.

For Year Ended Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
30/06/2020 31/12/2020 16/12/2020 $27,896 $49,969 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2019 31/12/2019 6/12/2019 $190,156 $169,411 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2018 31/12/2018 15/11/2018 $38,930 $49,171 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2017 31/12/2017 12/12/2017 $51,644 $86,091 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2016 31/12/2016 21/11/2016 $70,120 $51,020 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2015 31/12/2015 13/12/2015 $42,912 $58,850 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2014 31/12/2014 16/12/2014 $90,418 $74,985 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2013 31/12/2013 23/12/2013 $48,259 $52,145 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2012 31/12/2012 10/12/2012 $54,222 $85,380 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2011 31/12/2011 21/12/2011 $97,202 $82,619 load annual return's financial documents spinner gif
Included in Annual Return
  • 1

Officer Details

Officers

Officer Name Position Effective Date
Nadia Mitchell Trustee 10/12/2014
Paul Marquardt Trustee 10/12/2014
John Forman Chairperson 18/04/2000

Past Officers

Officer Name Position Past Since
David Norris Palmer Trustee 20/04/2019
Philip Mckinstry Trustee 12/12/2017
Dianne Rosemary Webster Trustee 10/12/2015
Jennifer Ann Noble Secretary/Treasurer 1/07/2011

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Date Created Reference View Summary (.pdf <1MB)
19/07/2019 NOC010
18/07/2019 NOC009
16/12/2014 NOC005
10/12/2012 NOC001
21/12/2011 AR004
21/12/2009 AR002

Charity Documents

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Date Uploaded Document Type Reference Name

No supporting documents.