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Charity Summary

Charity Details

Ehlers-Danlos Society New Zealand Incorporated
Ehlers-Danlos Syndromes New Zealand

Registration details

March 31

Address for service

Unit 2
21 Alexander Avenue

Charity's other details


Organisation with a focus on the following communities:


Purpose & Structure

Charitable Purpose

Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Note: The main sectors, activities and beneficiaries are bolded.

Provides advice / information / advocacy

Acts as an umbrella / resource body, Provides services (e.g. care / counselling)


Education / training / research, People with disabilities

People with disabilities

General public

Entity Structure

Ehlers-Danlos Syndromes New Zealand’s Leadership consists of the President, Treasurer and Secretary. Our Committee size is 6 in October 2023. We are always looking for more committee members.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

For Year Ended Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
31/03/2024 30/09/2024 - - - To be filed To be filed
31/03/2023 30/09/2023 9/10/2023 $6,694 $4,119 load annual return's financial documents spinner gif
31/03/2022 30/09/2022 13/10/2022 $4,928 $5,321 load annual return's financial documents spinner gif
31/03/2021 30/11/2021 25/11/2021 $1,975 $4,208 load annual return's financial documents spinner gif
31/03/2020 30/09/2020 14/09/2020 $4,988 $1,978 load annual return's financial documents spinner gif
31/03/2019 30/09/2019 9/09/2019 $50 $0 load annual return's financial documents spinner gif

Officer Details


Officer Name Position Effective Date
Sarah Teare Committee Member 11/08/2022
Nikita (Nikki) Van Dyk Committee Member 1/06/2022
Wendy Fairs Committee Member 1/09/2021
Tara Apperley Treasurer/Committee Member 11/06/2020
Jennifer Saunders Secretary/Committee Member 28/04/2020
Kelly Jessie Zane McQuinlan President 1/05/2018

Past Officers

Officer Name Position Past Since
Jasmine Turner Committee Member 1/04/2023
Fleur Bourgeois Committee Member 12/02/2022
Peter Bourgeois Committee Member 12/02/2022
Alli Jackson Committee Member 1/01/2022
Sharleen Bigham Committee Member 4/10/2021
Angela Desmarais Committee Member 14/04/2021
Pamela Buckingham Committee Member 9/09/2020
Lisa Preston Treasurer/Officer 20/05/2020
Natalie Dudley Committee Member 11/03/2020
Stephanie Aston Secratary 15/07/2019
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Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Date Created Reference View Summary (.pdf <1MB)
9/10/2023 NOC011
23/09/2022 NOC010
23/09/2022 NOC009
10/11/2021 NOC006
10/11/2021 NOC005
10/10/2019 NOC003
9/09/2019 NOC002

Charity Documents

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Date Uploaded Document Type Reference Name

No supporting documents.