Charities Services

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Charity Summary

Charity Details

Legal name of the Charity:

Ehlers-Danlos Society New Zealand Incorporated

Other Name (inc Trading Name):

Ehlers-Danlos Syndromes New Zealand, Ehlers-Danlos Syndromes Aotearoa, Ehlers-Danlos Syndromes Aotearoa New Zealand

Registration number:

CC55826

NZBN number:

9429046799357

Current Status:

Registered

Registration details

Date of Registration:

12/06/2018

Balance Date:

March 31

Address for service

Charity's Postal Address:

Unit 2

21 Alexander Avenue

Torbay

Auckland

0630

Charity's other details

Phone:

0211574626

Email:

Kelly@ehlers-danlos.org.nz

Website:

https://www.ehlers-danlos.org.nz

Facebook:

www.facebook.com/EDSNewZealand/

Other Social Network:

www.facebook.com/groups/LooselySpeakingNZ/

Areas of Operation:

Nationwide

Organisation with a focus on the following communities:

N/A

View Charity Link:

https://www.register.charities.govt.nz/Charity/CC55826

Purpose & Structure

Charitable Purpose

Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Note: The main sectors, activities and beneficiaries are bolded.

Activities:

Provides advice / information / advocacy

Acts as an umbrella / resource body, Provides services (e.g. care / counselling)

Sectors:

Health

Education / training / research, People with disabilities

Beneficiaries:

People with disabilities

General public

Entity Structure

Ehlers-Danlos Syndromes New Zealand’s Leadership consists of the President, Treasurer and Secretary. Our Committee size is 6 in October 2023. We are always looking for more committee members.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Note: Charities that use the Tier 4 Combined Form to file their annual returns do not need to file their financial statements separately. The financial statements are included in their annual return summary.

For Year Ended	Due Date	Date Submitted	Total Income	Total Expenditure	Financial Statements	Annual Return Summary
31/03/2025	30/09/2025	-	-	-	To be filed	To be filed
31/03/2024	30/09/2024	10/10/2024	$4,812	$5,065	Included in Annual Return
31/03/2023	30/09/2023	9/10/2023	$6,694	$4,119	Included in Annual Return
31/03/2022	30/09/2022	13/10/2022	$4,928	$5,321	Included in Annual Return
31/03/2021	30/11/2021	25/11/2021	$1,975	$4,208	Included in Annual Return
31/03/2020	30/09/2020	14/09/2020	$4,988	$1,978	Included in Annual Return
31/03/2019	30/09/2019	9/09/2019	$50	$0	Included in Annual Return

Officer Details

Officers

Officer Name	Position	Effective Date
Annabell Young	Committee Member	20/08/2024
Grace Blackett	Secretary / Committee Member	8/08/2024
Sarah Teare	Committee Member	11/08/2022
Wendy Fairs	Committee Member	1/09/2021
Tara Apperley	Treasurer/Committee Member	11/06/2020
Jennifer Saunders	Committee Member	28/04/2020
Kelly Jessie Zane McQuinlan	Co Founder / President / CVO	1/05/2018

Past Officers

Officer Name

Position

Past Since

Nikita (Nikki) Van Dyk

Committee Member

24/08/2024

Jasmine Turner

Committee Member

1/04/2023

Fleur Bourgeois

Committee Member

12/02/2022

Peter Bourgeois

Committee Member

12/02/2022

Alli Jackson

Committee Member

1/01/2022

Sharleen Bigham

Committee Member

4/10/2021

Angela Desmarais

Committee Member

14/04/2021

Pamela Buckingham

Committee Member

9/09/2020

Lisa Preston

Treasurer/Officer

20/05/2020

Natalie Dudley

Committee Member

11/03/2020

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.

Date Created	Reference	View Summary (.pdf <1MB)
9/10/2023	NOC011
23/09/2022	NOC010
23/09/2022	NOC009
10/11/2021	NOC006
10/11/2021	NOC005
10/10/2019	NOC003
9/09/2019	NOC002

Charity Documents

Date Uploaded	Document Type	Reference Name